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I’m a 81-year-old man who had a total thyroidectomy on March 7 and recently completed RAI. I followed the low iodine diet and isolation guidelines (figure 4) very carefully. These were a tremendous help as the instructions from my doctors were very minimal. I have a wife and pets (no children at home) and certainly didn’t want to expose them. I had access to a Geiger counter so I was able to monitor my radiation levels and was impressed on how closely they followed the guidelines. Following the low iodine diet was very easy for me, and the credit for that is due to my wife who carefully researched foods and prepared delicious meals. I certainly wouldn’t want to go through this procedure alone, and especially with small children in the house. A big thank you to all the administrators!
I am very appreciative of the resources within this group. I am thankful for those who took the time to research and place a group with those battling their illness. It's heart warming to know there are still great people in this world. I love the none humiliation when asking about specific issues. Thank you again. I would have been lost without this resource.
Thank you for this site. My 16 year old daughter started RAI yesterday and the doctor said her levels were absolutely perfect from the diet. It would have been a million times harder with a teenager if I didn’t have this group/website. We are so appreciative!
I was given NO NOTICE - I had to start the LID diet right away. That was complicated by the fact I have irritable bowel syndrome, so I'm already following a low-FODMAP diet. Thanks to your website and research, I was able to quickly confirm that many of the brands I already eat regularly do not contain iodized salt. Thank you SO MUCH for doing this research!
I wasn’t given a heads up before my doctor told me to start my LID. I was 6 weeks post TT without meds. Being in that condition with also starting a LID it was hard to process what I could and couldn’t eat. This website has given me hope through it all. I had to be on a LID for 1 1/2 weeks before I was able to get RAI. Such an amazing and helpful website!
I want to say Thank you to everyone in this group but especially to the admins on this page. When the doctor handed me paperwork about the LID diet on January 23rd...my first thought was panic...I’m going to starve. This website has truly been a lifesaver for me. I had labs drawn to check my levels prior to treatment on Tuesday. My iodine level was 11! Treatment is Tuesday and should proceed with no issues. Thank you again from the bottom of my heart for making this so informational and for not allowing this girl to go hungry!
Thanks to this site my iodine level was 23.7 ug/L. The administrators here kept me company the whole time, often answering questions in minutes. My first LID was so difficult. This one was a breeze! Ready for RAI next week!
If anyone one has ANY doubts that the LID Life people don't know what they are talking about... I want to offer up my proof. I had an iodine contrast CT in December an my Endo was worried my Feb RAI would be too close, so she ordered a 24 hour urine iodine test. I asked her if I should do LID - and she said it couldn't hurt. She gave me her version, which I ignored and followed the advice here. The normal range on the test I took (I am in the US) was 100-499. After only FOUR DAYS on this diet my level was at 30. I ate all the approved meat I wanted, and ate foods from the countless companies approved here. Now I have been on the diet for almost 15 days and I know my levels will rock for my RAI next week. DO NOT STARVE YOURSELF!! TRUST THESE PEOPLE!!!!
Thank you is not strong enough for how grateful I am for all of this wonderful help! I am doing the LID for the second time. I am so very thankful for this site. I was not aware of it before and it has been a tremendous help. So much helpful information. I appreciate the time and energy that went into making this available for people that need guidance and help. Thank you Thank you Thank you!!!
LID for the 5th time! Tonight I sat down to update my grocery list to buy what is needed for my next round of LID, by checking the Kroger and Trader Joe's I have made my list and will shop this week & be ready for me to begin after Thanksgiving! I have found a few new recipes that I can make for a family of 7 and not feel that I am making 2 meals at a time. Agin thanks for all the support. Keep fighting and staying NED